Hi Mel

I am on Imuran it has worked well for me. Can't help with the TTC bit, but I am sure someone on here will. There is Arava but TTC not allowed with Arava. Sorry MTX not working but it didn't for me either.

I really hope you Rheumy team can come up with something - has anti-tnf been discussed?

Yes one can TTC on Imuran, I was on it for years and years and conceived both Ben and Marie whilst popping it! LOL

I did however come off it as soon as I found out i was expecting.

Sorry MTX is not doing it's job for you.....

Much love.
A

Hi melly,I had no idea that swollen glands had anything to do with the mtx, mine have been up for ages, but never thought about it, my throat is sore alot of the time, didnt think of the mtx. It doesnt work anyway, been 5 months and nothing, the last ESR was 66. I never seem to get any info from the rheumy clinic, but oh well, theres always March!!!

Hi Mel,

Sorry can't offer advice on meds. Are you feeling any better today?

Julie

Hi thanks all

es i dont qualify for anti tnf
old rheumy said.
i need be off mtx and sure new rheumy will do so next appointment,sulpha told cartn have as may casue lupus to flare.
yes maybe ritxitab whats it.
sounds like he may give me imuran then.
thanks amanda as whatever me rheumy dedcide on it wil whats safe to ttc and its got towokr both lupus and ra.
whihc isnt hard as most ra meds used for lupus aswell.
planequil beign one they strat with.
thanks blue star i bear those in mind.
glands still hurtsy,throat medium so hot ginger lemon fresh and honey tea,gargle with aspirin but dont swallow as mustnt with mtx.

after xmas new year if throat still same then i shall call rheumy let him know its after mtx doseage sure he wils top it for me as ive ahd this consitenly.
shall rest now all prertaions done.
just pressies to wrap thats it.
lv melly

Hi ya

are you thats good it going ok then/
carnt have that as wnat tc next year think extra planequil will help alot.
and imuran sounds good as can ttcc on that to.
leufomide afterhad child sounds good.
praying liver to behave.
its the xmas prep flare up last year had steriod jab this year none have to avoid to lose weight.
melly

Happy Chritsmas Mary
ahh thanks,neither here nor there as yet-put me onto planequil as suitable for both lupus and ra wnats me come off mtx once planeqil kicking in bit.

rheumy wanted take me off it november aprently i wasnt keen so soon before xmas,daft really considering had spent 6 months trying get through to old rheumy it wasnt working.

expect he up the planequil before withdrawing mtx its not worked well for some time but old rheumy who used to see wouldtn do anything lol.
lupus or ra or both still no def answer sorry thought id said so.
says it may take years to get firmer answer so far have sytpoms of both.
fibromalgia def confirmed as is inflammtory arthritis,and enodmetrois by gynae last week as early stages of that.
must be pretty def re lupus or rheumy woudlnt have started me on lupus/ra medication and hes still doing more test and may well do so onwardly for some time.
looking at systemic lupus erthymaseous.
so im stil in limbo land but at least taken seriously as to whats wrong.


thanks for asking do hope things going well for you.
maybe 2010 willbring me def answer they say lupus can really come to show its self with pregancy whihc we are aiming for 2010.

sorry bit long reply but things rather complex.
lv and peace melly

Hi Mary


Thanks course u can ask,i might not know though.
didnt get that stage yet with rheumy only gynae had said re lupus would be rik of miscarriage and so high risk pregancy for which needs a speiclist gynae /obs consultant involved.
he deals with lupus a fair amount.

even skin lupus as it can chane to systemic espaiclly during pregancy for some.
course they tell the worst and epect best.

nurse said ra would have be controlled,and ttc stage most likely be medically controlled re medicaton.
Endometrois and lupus the highest risk to my health and chances of tcc yes need to be controlled also.
both of these they run ttc during preg and after clinics here in London.

he did say i will need expect more challenges and need support.
afraid i did not ask any more wet into shock zone out time.
hope you had fab xmas day we did family came had nice meal.
melly

goody gum drops thanks Amanda
merry christmas

ps what strength is imuran compared to planequil?
does one have bloods on it as planequil im told i woudlnt have any done liek do with mtx!
melly

Thanks amanda
ahh bles on bro pc well done you.
ahh right so its imuran that one does ok bear all in mind when see rheumy next march so not so long.
coming out of mini flare today.
goes by weight he he il need alot then,gosh sorry ehar he out u on wrogn dosage naughty glad u changed lol.
melly